Patient registries

Policy-makers and national patient registry experts from the Beneluxa initiative and Hungary explored a possible collaboration in the field of patient registries in Vienna on 28 November 2017. One of the outcomes was an inventory of different registries in the Beneluxa countries Belgium, the Netherlands, Luxembourg and Austria. This inventory below referring to Q2/2018 does not claim to be comprehensive as that was not the aim of the meeting. In case of missing registries, we appreciate if you could contact the Beneluxa initiative. Information on Ireland has not been included in this mapping exercise because it was not member of the Beneluxa initiative at the time of the inventory.